October Update

We had a few minutes outside last night.

Yes, that is snow in the background.

Yes, it isn't quite Halloween yet.

I'd also like to report on how the feeding is going. Earlier this month we started to reduce the amount of pediasure sure we are supplementing with. I'm happy to let you know that her appetite seems to be improving and she is eating more food by mouth. She still relies heavily on crunchy carbohydrates, but I manage to get in a fruit or vegetable now and then. We meet with the dietitian Fri to see how our latest 3 day food record holds up.

Phoenix is getting better at repeating back two word sentences to me when prompted. I am working at getting her to say one word and then a second. "Mom, down" or "go,  down" for example. Sometimes I can get her to sign/say "more, crackers, please". She seems to be getting the hang of it.

Last night she even asked for "more, carrots". Which is HUGE because she never asks for more vegetables. It was AWESOME.

And we are getting her to eat a multivitamin. There is a huge amount of cheering involved to get her to keep it in her mouth and chew it. And then she cheers and claps for herself when she is finished with it.

Progress. We are making progress.