Keep your eye on the prize

We received Phoenix's end of year IPP and Mike read it to me over the phone (I am away visiting my mother in Toronto).

I've been involved in many, many IPP meetings through the years as a teacher for at risk youth. Most of the time the goals and results are not a surprise to the youth or their parents and the meetings are just a formality. 

With a kid with DS it's a little different as so many more areas are looked at (OT, PT, SLP) and academic knowledge. I've heard from other parents how challenging and upsetting these meetings are because the focus is often on the deficits, especially in comparison to typical peers. 

So Mike read me her scores over the phone. There were some 1%'s and some 8%'s and and even a -4 in something, although I can't remember what. 

And my reaction surprised me. I laughed. Loudly, and for a long time, because the numbers are so at odds with my perception of Phoenix and her development. 

Because we don't compare her to her typical peers (why would we? She's not typical) we just don't look at her in a negative way. Ever. 

We don't focus on deficits. We look at areas that we want to work on (lately articulation and feeding herself with utensils, both of which she is making gains in) and we go from there. 

I understand the need to make these comparisons because her funding and spot in the program need to be justified. 

However, it's not really fair to compare Phoenix to other typical children her age. She not typical. Typical kids don't have low muscle tone which affect their fine and gross motor skills as well as their speech. Typical children don't have the same challenges. Typical don't attempt to learn a skill (like jumping) over and over every single day, with a huge smile on their face and then try again because it is fun to do so. 

Because we have taken the mindset we have, and because we are great at supporting each others resiliency, these meetings don't phase us. I'm going to listen in to tomorrow's actual meeting so I make sure that Phoenix's strengths and in particular, her strong academic knowledge, are noted and touched upon. Because these meetings can't be all doom and gloom and focusing on what she can't do. They need to reflect the whole child. What she is good at and what she needs to work on.

Phoenix recently started using the big kid swing. She hasn't got the hang of pumping yet, but she is stable when I push her. And she loves swinging.
 

So to parents that do have difficulty with these meetings, a word to the wise. Keep your eye on the prize ie just remember that you have a fantastic kid.

We don't look at our friends and loved ones and judge their worth in terms of how well they perform on standardized tests. Why would you judge the worth of your child that way?